Spread the word
Please do share this website with others. A major obstacle to fundraising is the lack of awareness of EB and the horror that it causes sufferers and most importantly the hope that now exists to treat and maybe cure the condition. Awareness raising is therefore of paramount importance.
You could run a Marathon (or maybe less far!, cycle, walk, climb – any sponsored event could help raise awareness and generate much needed funds.
Charity of the Year
Your company could make the Sohana Research Fund your company’s cause for the year. This would help to spread awareness of EB –anyone who hears about it cannot believe that such a condition exists.
Your childs school could fundraise for the Sohana Research Fund. It is a fantastic was to raise awareness.